Natter and Ramblings

Tuesday, July 18, 2006

a "lurker" no more

I go there everyday almost, the public autism awareness website for news. News of what? a cure, maybe not, it will always be there for life. Improved resource treatments available and explanations defintely. I follow most of the stories and this year has been full of them.

I like most is the basketball star, and the piano player in a school activity. Why, my son cannot play basketball -- he plays it like soccer :-) and my son plays the piano, very well i might add. He started piano lessons a year ago now.

I pray in silence when I read about kids missing and say thank you God! when they are found safe.

I am sad when I read news of death especially in accidents involving water. ReyMey, he knows how to swim. We had him taught, considered it kinda like his other therapies, necessary. We have a pool and he loves the water.

I get encouraged by the success of fundraisings and wonder how can it be adapted here in the PI (Philippine Islands) .
Hence yes I have seen the video 'autism everyday' and I signed a protest initiated by leftbrain/rightbrain blogger mainly because it is INCOMPLETE. it is not what you would consider entirely accurate. My child, he did most all of those shown initially but they left the part out that with interventions they improved, so I felt they did not show the finished product a child looking forward to a life with a better future.

Anyway It's Disability and Rehab Week here in the PI and this saturday my hubby and I are going to watch the first documentary on autism here in the Philippines. It is called 'Alyana, a study of autism in the Phils' film by Miranamedina. I am hoping it inspires awareness about what autism is and show that if interventions are done they have a future of becoming independent and some philantropist would make a hefty donation to sponsor the interventions of the children who cannot afford it.

Monday, July 17, 2006

blogging the second time around

Okay I will have a go at blogging again. This time I hope I make an effort to habitually update.

Why? I created this blog site a year ago in the hopes of chronicling (is that a word?) well putting into writing what has been going on with my family and still remain anonymous :-p

As you can see, I failed to progress after the first post and why is that?
1) Writing composition is not one of my great points.
2) My English is not that good
3) too personal
4) when you blog comments are fair game /free for all I was not ready for no use blogging with the comments turned off.

Nothing much improved since last year, so why am I trying again?

So parents with an autistic child will know that there is HOPE :-) Early interventions works. And our children progress. My son does and hard work and team work really pays off. (I'm emboldened to come out in the open to encourage parents, cases of murder is murder, suicide is suicide, it's too drastic and too final it cannot be undone.


This started because I have a son who is autistic, let's call him ReyMey. He is 9 years old, and a Grade 3 student, mainstreamed.

It started because ReyMey is much improved, nobody believes he's a "classic". Other parents of autistic children (in sped school) think I'm lucky ReyMey's has only mild autism but that is not true. Would that I would like to leave it as such but I feel that by doing so would dishonor the efforts of all the Occupational Therapists, Speech Therapists and SPED teachers who worked with him and it would not be fair to them.

So what do I tell my co-parents, it's not true when ReyMey was the age of their kids, his condition was worse. And they look at me with disbelief (like get out of here!! liar) but it's true, ReyMey improved because he worked very hard along with the schools/therapists to find the correct way to process information in his brain in that it lead him to communicate, learn and understand what happens around him.

I, and this is my opinion, happen to believe that brain is crosswired, I also happen to believe it's a combination of his brain's bad wiring along environment triggers that compounds and complicates the issue.

I am a "silent lurker". I read a lot of posts on autism, always reading but never contributing a comment. Some folks are so eloquent at saying what they mean maybe if I practice like this I can get better.

Next post would be the history to current events of ReyMey, that lead to finally this 'coming out of the closet' and then finally just chronicles of joyful updates because our life gets better and better.



:-)